Read all of my Infusio posts here.
I have some exciting news to share with you this week. Very soon, I will be headed to Infusio, Frankfurt for Lyme Disease treatment. This is something that my family and I have been considering and researching for a long time. We all feel that it is the best option for me going forward and I feel excited, overwhelmed and extremely hopeful about it.
Follow My Progress
I fully intend to share as much as I can about my time in Germany. If you are interested in seeing how I get on, be sure to follow me on Instagram. I hope to share daily updates in my feed and on my Instagram stories. I like Instagram as it’s almost like a mini-blog, but it’s less time consuming and more instant.
I will, of course, be blogging about my experience but it may take me a bit of time to get my blog posts written and posted. Healing and recovery will be my main priority following treatment. So I will be using Instagram as a means to share updates more quickly. Follow me here.
What is Infusio?
Infusio is essentially a concept created by a British Naturopath called Philip Battiade. Infusio’s philosophy fits closely with my own and their approach is to essentially rebuild and restore your body to address the root cause of disease. Infusio treat chronic diseases, such as tick-borne diseases (i.e. Lyme disease and coinfections), and have clinics in various locations. I will be having treatment at Infusio, Frankfurt.
With Lyme Disease, Philip Battiade believes that there has to be a ‘perfect storm’ for someone to fall sick. That storm is a tick bite, a compromised immune system and an unhealthy cellular terrain. In these circumstances, bacteria can invade the body, overwhelm us and create further damage.
To me, this makes perfect sense and I fully believe that there is more to Lyme disease than a bacterial infection. It’s a concept that was instilled in me very early on by Dr Bill Rawls. Dr Rawls has written a great article on the connection between Lyme Disease and chronic immune dysfunction. So if you want more information on this, be sure to check it out.
5 Steps to Health
Infusio adopt a ‘5 steps to health’ concept. This includes immune modulation; substitution; detoxification; disease-specific treatment and mind-body medicine. The aim of their therapies and treatments is to reduce the microbial load, re-establish a healthy immune system and repair the damage that has been done to the body.
Additionally, Infusio also address damage caused by genetic mutations. Part of their treatment involves ensuring the detox pathways in the body are working correctly (which can be an issue for Lyme Disease patients).
I won’t detail all of the treatments I’ll be receiving at Infusio here as I will be sharing more about this in future blog posts. But, I feel it’s important to share that a big part of the treatment at Infusio, Frankfurt is cell therapy. Infusio use Stromal Vascular Fraction (SVF), which is derived from your own fat.
SVF contains stem cells, as well as other beneficial cells and growth factors, that work to repair damage to the body and promote healing. Stem cells can differentiate and replace damaged cells, plus they also have a systemic effect and help to regulate body functions.
The procedure to extract SVF involves a mini-liposuction that is performed under local anaesthetic. The extracted fat is then processed to remove any unwanted elements before the SVF is then injected back into the body via an IV.
SVF is a very modern form of regenerative medicine. You won’t find any published research on SVF and Lyme Disease. However, there is literature that has been published that shows it is safe. Additional studies show it has a lot of promise for treating other conditions (such as autoimmune diseases).
For me, personal experience counts for a lot (science can, unfortunately, take many years to catch up and research into chronic Lyme Disease is lacking in general). A lot of people have had good success with treatment at Infusio. I believe 80% of people treated there have improved and returned to a functional level. That’s very good odds if you ask me!
It’s Not For Everyone
Despite the good odds, this is not a treatment for everyone. Aside from the financial commitment, treatment in itself will be challenging. Recovery and healing can be hard. You have to trust in the process.
Although some people will visit Infusio, feel better and then continue to feel better afterwards others will not. As the stem cells get to work to heal and repair the body, many people go on a physical (and emotional) roller coaster ride. There can be ups, downs and crashes along the way.
Healing is very complex and takes time. No one knows the exact ins and outs of how SVF works but it’s thought that SVF first addresses problems caused by inflammation. Neurological damage can take 6 to 9 months to even begin healing (so if that is your main issue, healing takes longer). Overall, Infusio say to give cell therapy up to a year to do its thing.
Patience will be key to recovery. And, when you are in the midst of it and feeling worse (or no better), that is a challenge in itself. I feel I have prepared myself mentally for this, but I know I have a good support team around me ready to pick me up and encourage me if and when I need it.
The First 100 Days Are Important
The first 3-4 months following treatment at Infusio are critical. Less is more during this time and you have to allow the stem cells time to recalibrate and do their job. You are discouraged from using any therapies or treatments that could potentially interfere with the stem cells.
It will be incredibly weird– but also kind of liberating– not to be taking lots of pills and therapies during that time!
After approximately 100 days, I will receive a follow-up appointment at Infusio and will be advised about anything that will be helpful for me to take (or do) going forward.
Why am I Choosing Infusio?
If you have been a long-time reader of this blog, you will be aware that I have been chronically ill since 2011. In 2013, I was diagnosed with Fibromyalgia. Typical Fibromyalgia therapies were unhelpful to me and nothing my doctor could offer seemed to help. My health continued to decline and I ended up bedbound in 2014.
I began self-treating with herbs after reading a book called ‘Suffered Long Enough‘. It completely changed my view on my illness and made me explore herbal and natural therapies. Though I made promising progress, I then plateaued. It was as though I had hit my glass ceiling and couldn’t find the way past.
Determined to find answers to help me progress, in September last year I had a consultation and subsequently began treatment at Breakspear Medical, a clinic in England. It was Breakspear who diagnosed me with Lyme Disease. I’ve had people ask me why I am going to Germany instead of continuing treatment there.
I want to say that I personally think Breakspear is the best option in the UK for Lyme Disease treatment. I had treatment there from September 2016 through to April of this year (2017). I found the doctors there to be knowledgeable, compassionate and understanding. For me, Breakspear played a big role in helping me to better understand what is wrong with me and why I am ill.
I am definitely better than I was before I went to Breakspear. The reason I stopped having consults with my doctor in April was simple. After I discovered that antibiotics weren’t the right path for me, I was put back onto a herbal protocol for my Lyme Disease. I felt confident to do this myself since I had been self-treating my fibromyalgia with herbs for two years prior to going to Breakspear.
It made sense to save money and only have a consult with my doctor if I ran into problems. I did continue to have help and support from my Breakspear doctor via email, which included help with my thyroid.
There were, of course, many other tests and treatments that Breakspear could offer me. I hadn’t exhausted all options (far from it). And, I know others who are progressing well at Breakspear.
For me, it was a case of weighing up my options. I had tried the treatments I was most interested in at Breakspear and, from that point, I had to reassess where I wanted to go.
I think it is wise to continually reassess and question things. For me, my gut feeling is that Infusio is the best option for me moving forward. I have been researching Infusio since even before I went to Breakspear (but seeking treatment in the UK seemed the most sensible option at the time). It now feels like the right time to go to Infusio.
How am I Feeling About Going to Infusio Frankfurt?
I think one of the most important things to listen to when you make decisions in life is your intuition. And mine is strongly telling me that treatment at Infusio is the right thing to do.
As soon as I booked this treatment, I felt a shift in me. It’s strange. As much as this decision terrifies and overwhelms me, there’s also an underlying calmness surrounding my decision to go to Infusio. Deep down, I know this is the right thing for me to do.
I’ve been feeling so upbeat and positive from the moment I said yes to going to Germany. I signed my consent form for treatment right before I travelled to London. And I swear this, in part, helped me get through what was a full-on weekend for me.
The only thing that makes me a bit sad about going is the fact I’ll miss my dog, haha! Oscar is my constant companion and he’s always there for cuddles when I’m feeling rubbish or struggling. Luckily, it’ll be me missing him more than him missing me. We have a pal house and pet sitting for us, so he will be very spoiled when we are away.
Getting Stem Cells for my Birthday
I will be at Infusio for my birthday this year. It will sound odd to most, but I can’t think of a better gift to give myself than treatment and stem cells (with the potential to get my life back). I remember writing quite a depressing post about turning 30 last year. I didn’t handle that milestone well as it made me reflect on the fact I’d missed out on so much in the second half of my twenties.
This year feels completely different. I feel incredibly positive about what 31 has in store for me. Here’s hoping that, come my 32nd birthday, I will be reflecting back at how much of a positive difference treatment at Infusio has made to my life.
Want to Learn More?
If you want to learn more about Infusio, including what the treatment involves, visit their website. They have brochures that you can download. There are also a few bloggers who have written about their progress:
- Terry from Color Me Lyme
- Jen from Honeychick Homestead
- Erika from The Trail To Health
- Rebecca at Medical Mystery Tour
- Denise at Stem Cells or Bust
- Felicity at Lyme Tales UK
And, if you want to see how I get on, be sure to follow me on Instagram.
P.S. Isn’t my ‘Amazing Things Will Happen’ banner awesome? I got it from Etsy.
Share on Pinterest:
Read all of my Infusio posts here.