If you are new to my blog, my name is Donna and I have lived with Lyme Disease, Fibromyalgia and CFS for a number of years. I had stem cells for Lyme Disease at Infusio, Frankfurt in 2017 and have been documenting my progress on this blog. Find all of my posts about Infusio here.
Can you believe it’s been 8 months since I received my stem cells for Lyme Disease? In my last update, I talked about being glad to see the back of May and that I hoped June would be kinder to me. I’m happy to say that it was; June was a great month for me.
It never Fails To Amaze Me How Quickly Things Can Turn Around
I had a horrible month in May (with a virus and symptoms caused by neurological repair). Coming out of that, I was worried that it would take some time to regain my stamina and get back to where I was.
However, I needn’t have worried. By the second week in June I was doing better than I have in years.
I also did more than I have in years this past month. June saw me visit Edinburgh three times and take a trip to Inverness to have a night out with friends. There were also many days that I walked over 10k steps, which is just mind-boggling to me.
The great thing about doing more is that I am noticing positive changes to my body. I am gaining muscle again and becoming stronger as a result.
I still Have A Few Symptoms Hanging Around
That said, during this time, I wasn’t completely symptom-free. However, if I was to put a number to it, I’d say I was around 80% better. And, I’ll happily take that!!
My energy was good, I wasn’t in pain and my mind was clear. It was just that some days I could feel mildly flu-like. Or I’d have some symptoms of neuro repair, such as pins and needles, anxiety and itchy skin (from histamine).
I feel it’s important to say that feeling flu-like has been one of my main symptoms for years. So, it’s nothing new for me and it’s much milder than it was even a few months ago. It’s just that it’s still hanging around me.
Hopefully, it will eventually go with time but, if not, I’m sure Infusio will help me with this symptom.
I also had some bother with my ears last month, with them feeling full and even painful at times. I have no idea what that was all about but I tell myself it’s been something healing-relating (I like to have a positive outlook on things!).
Neurological Repair Symptoms Improve With Exercise
With regards to the neuro symptoms, the interesting thing is that they improve with exercise… which is so alien to me. I spent years living with exercise intolerance and suffering from post-exertion malaise when I overdid it.
And, overdoing it used to be simply getting through the day!
To have exercise be such a helpful and positive thing… it’s taking some adjustment to get used to if I’m being honest. I’m having to learn to trust my body more.
That said, I also have to be aware of times when exercise won’t help. There has been the odd day here and there where I’ve felt tired and ill. During those days, rest was the most important thing for me.
The good thing is that I always recovered quickly from those down days. Sometimes it would only take a few hours of rest, other times I’d feel better the next day.
Talking of rest– despite being more active this past month– it’s still been important for me to have regular rests throughout the day. I’ve always been a fan of pre-emptive rest (i.e. resting before you need to) and I continue to use this strategy even now.
Listening To My Body Is Super Important
I guess the important thing has been staying in tune with my body and listening to my intuition. It could be very easy to get carried away but, my body always keeps me in check if I pay attention.
I also fully believe that re-assessing my diet and following the Vital Plan Gut Revival Kit has helped me this past month. I’ll write about this more in a future update but I believe going back to basics with my diet has been truly beneficial for me.
Blips And Setbacks Still Happen
In the past week, I’ve had some symptoms crop up again. I think these could be neuro-healing related. It’s hard to know for sure.
The main symptoms have been fatigue and dizziness (including vertigo when it first started).
You could argue that I’m experiencing them because I’ve overdone it, or it could even be that I’ve picked up a bug. It’s hard to know. And, to be perfectly honest, I’ve reached a point where I’m not over-analysing the cause of symptoms.
Instead, I’m just riding them out and doing what my body needs. I’m thankfully starting to feel better again and I’m sure that will continue.
I’m More Than Happy With My Progress
I guess I am still experiencing the ups and downs (that I have had all along). But, I’ll happily take a few weeks of improved health with a few poorly days here and there (which are nowhere near as bad as they used to be!).
It is much better than the weeks of poor health with the odd good day here and there I used to live with. Plus, I’m functioning really well during the good days, which is I’m very grateful for.
I know that my journey following stem cells for Lyme Disease hasn’t been a straightforward one. But, I’m definitely more than happy with the progress I have been making!
For the first time, I feel confident to plan for the future without any stress or anxiety (worrying about whether I’ll manage when the time comes). For example, we have booked a short break to Disneyland Paris and I couldn’t be more excited about it!
I feel that I’m very close to maintaining better health. I just need to be patient and remember that I am still healing.
- How my symptoms have changed in the 100 days after stem cells
- Diagnosing Lyme Disease: why it can be challenging
- Why I’m feeling disconnected from my Fibromyalgia diagnosis
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